In London, Bailey, 17 has been suffering from epilepsy since he was two and has seizures which makes him fall to the ground at times. His parents have to sleep in the same room every night so he doesn’t suffocate on his pillow.
After a change in the law in November meant medicines containing Tetrahydrocannabinol (THC), the psychoactive ingredient in cannabis, became available for prescription from specialist doctors.
But it is still not available on the NHS, meaning Bailey’s parents have to pay thousands to a neurologist in London for the medicine, which he takes three times a day.
They say they tried as many treatments and drugs over the years but that this one is the only one making a difference.